Here is Pat's response...



Date: Thu, 18 Nov 2004 07:21:06 -0800 (PST)
From: Patrick J. Volkerding <volkerdi at slackware.com>
To: Adam Maloney <adam at whee.org>
Subject: Re: [HELP] - From TCLUG



On Thu, 18 Nov 2004, Adam Maloney wrote:
> We have discussed many different ideas on how to help, but in the end, it
> boils down to what you want.  There have been talks of a fundraiser for
> your medical and other expenses, helping you get care at the U of M or
> another hospital in the area, and transportation from and to Fargo.

No need for a fundraiser yet -- I just want to get treatment.  I'm at the
Mayo Clinic right now, but I'm having a whale of a time convincing them
that I've had an infection (probably because it's being held at bay by
amoxicillin and so I don't show any signs that they can test for).
However, I do have heart problems that I didn't have last week.

They told me to quit taking the antibiotics, and about 14 hours later I
was as sick as I'd ever been this entire time.  At about midnight here in
a hotel in Rochester I started taking amoxicillin again, a lot of it.
About 5 - 6 grams in all overnight, and now I'm feeling somewhat better
again.  Anyway, it sure is hard to get people to look at this, even here
at what's supposed to be the best medical center in the world.  I've
rattled chains and now they say they will refer me to an infectious
disease specialist...  I just hope I can hang on long enough for someone
to help.  Oh, and I have considered going to the U of M, or the U of WI.
Heck, I've even considered going to a vet!  When you get to this point,
you'll consider anything.

I know some people on /. think I'm nuts and that I shouldn't be
self-medicating (something I don't do) or trying to figure this out on my
own, but a ton of experts have concurred with what I think is going on,
but also none of them are close enough to treat me.  I'm sure that if I'd
blindly followed all the doctors I've seen and not tried to be involved in
my own diagnosis and treatment that I would not have made it this long.

Thanks for trying to help.  :-)

Take care,

Pat

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